Sleep Apnea and CPAP – The Not So Sexy LifeSaver

One of the health issues that some dwarfs must deal with is sleep apnea (when you stop breathing while sleeping). This is a serious condition that must not be taken lightly. Unfortunately, both of us were diagnosed with severe obstructive sleep apnea in our 30’s. However, we made sure to take care of our health and we both are being …

Can’t vs. Shouldn’t

You know, talking about things LP kids can’t do versus shouldn’t reminds me of a recent conversation. A mom at an LPA regional cornered me recently to challenge what I contributed in a POLP workshop. She had a 6 1/2 yr. old achon daughter and had never heard of the Health Supervision Guidelines for Achondroplasia. This 30 yr. study of …

Limb Lengthening: The Naughty Words

I’m a strong believer in experiencing everything in life first hand, which includes our dwarfism. Speaking from one adult LP who faced shyness as a child, get him plugged into LPA events, beyond national and regional conferences. One needs to be surrounded by this community in order to experience it. Your child will see, his/her story is not the only …