A great brand that worked for a couple of the LP kids in our chapter is the Miraflex brand frames. They are high-grade rubber frames for prescription lenses for children. These frames fit well on the younger LP kids who have less of a bridge than other dwarf kids. Achons usually have more mid-face hypoplasia, which make it more difficult to fit eyeglasses at a young age. Mid-face hypoplasia causes the nose bridge to be less pronounced. Thus, it is more difficult to fit a pair of eyeglasses.
How many times has this happened to you? “Mom! Dad! Come help me in the bathroom!” No, it’s not a normal potty emergency.
You cautiously go to the bathroom and find your child pointing to the potty while making a face-palm gesture. Holding onto the spring-loaded toilet paper holder is hard enough for adults. But with children’s small hands, especially the hands of a dwarf child, controlling this unfortunate device can be extremely difficult. We wanted our six year old LP child to be independent enough to simply change a toilet paper roll. With a small palm and just being six, it was easy to understand that this accident could happen. But we can help make sure it does not!
Any new or experienced parent can tell you the fun and frustrations associated with bedtime. Whether you are dealing with nighttime breastfeeding, moving your child into their own bed, or solving a fear of the dark, bedtime is challenging for both parents and young children alike. This can be extra difficult for dwarf parents and parents of dwarf children. We have successfully sleep trained our dwarf child and are currently trying to have our average height daughter sleep in her own bed (though it’s taking a little longer while mom is savoring the “baby time“). For the first couple months, a bassinet was really useful for us as dwarf parents. Most bassinets are low, don’t take up a lot of space in the parents room, and are safe.Arm’s Reach Co-Sleeper Mini Bassinet downstairs for naptime and it also did double-duty as a changing table which was very convenient. Since our dwarf child was delayed and not really mobile, we kept the co-sleeping side rail down to make it easier to reach him in and out. If your child is an early mover, you’ll want to be safe and not keep it in the co-sleeper configuration.
Cribs and Dwarfs Don’t Work Well Together!
Now that drop-side cribs are no longer available, we believe it will be either challenging or expensive to find a crib that will work well for dwarf parents. LP arms are too short and we’re not tall enough to reach into a crib safely. Our dwarf son did not stand up until he was over 2 years old, so it would have been impossible to pick him up from the crib without a drop-side rail. Even with the drop side, we used a tall height setting for the mattress to make it easier to reach him. For our average height daughter, we had the opposite problem. She was growing so fast that we couldn’t keep her mattress on the tallest height because she could pull herself up and over the rail.
Our Physical Therapist at CCS modified a Kettler Kettrike Oceana for our dwarf child. We’ve received multiple requests for details on how this modification was performed, so below are some pictures to assist with doing the same for your child. Our son has a 9″ inseam and is on the 3rd percentile (height for weight) on the Achondroplasia Growth Chart. So as you can see, even with the smallest of LP children, you can modify this store bought bike without welding or major modifications.
In addition to the tricycle, our therapist also used a set of foot cups and pedal blocks. These attach onto the existing Kettler pedals and have velcro straps to help keep your child’s feet in place. They are removable when no longer needed. One place to buy these is Amtryke as they make customized Kettler bikes for children with special needs.
We always loved Halloween growing up and it continues to be a favorite holiday among many children. Unfortunately for those of us in the LP world, it can be difficult to find a costume that fits well. There are so many selections available for everybody from infants to adults online and in the mall, but they’re built for the average (average height) person! Here’s some tips we’ve found from our past experiences: