What if you could take a pill to make your achondroplasia go away? No more risk of spinal or foramen magnum compression. The chances of central and obstructive sleep apnea would be less. And there wouldn’t be that bothersome task of finding a bike helmet to fit. Would you take that pill? If it would lessen your child’s chances of …
Vehicle Mobility Assistance Programs
We recently purchased a Honda Odyssey minivan to support our family. While we love the vehicle, Honda unfortunately does not offer running boards anymore for the Odyssey. We were able to find that are made for the Odyssey, and even better, Honda will reimburse us for the purchase! Some of the automobile manufacturers have Mobility Assistance programs to help reimburse …
Cord Blood for Dwarfism Genetic Testing
When my husband and I were planning to get pregnant, there was the question of double dominancy for heterozygous dwarfism. My husband has pseudoachondroplasia and I have achondroplasia. We were told why take the risk and even TRY for children if there is a chance of health issues or being incompatible with life. And we felt, why not try? …
Eating Healthy and Having Short Arms
Soapbox Time. 😕 Please, parents! If there is one thing that you can do for your LP child (or any child): teach them to eat healthy and keep their weight down. It IS so easy for LPs to gain weight and even tougher to lose it. I’m not talking about body image. We’re talking about keeping the weight off for …
Disneyland Guest Assistance Card
Disneyland no longer offers the Guest Assistance Card. This information is only provided for historical purposes. We will update on the new, improved Disability Access Service at a later date. How do I get to the Front of the Line at Disneyland? OK, we figured we’d just put the question out there since that’s what you’re most likely thinking. Short …