Classroom Setup Check off List

When you read our son’s list of grade school adaptive equipment, it’s like reading a rider list for a rock star.  Well, he is a rock star in his own right, but this equipment helped him safely maneuver around campus.  He has had some of this equipment since he was 2 years old in the Early Intervention program.  Over 6 …

Playing Musical Instruments in Grade School and Beyond

Question:  I’m thinking of starting my older AH son on violin soon, which got me thinking, how that might work for my child with achondroplasia if/when he wants to start. Do any of your achon kids play? I guess they make violins small enough? Will his fingers make it around the strings? Does the asymmetrical posture have any impact on …

Low-Incidence Funding

When my husband and I were in grade school, there was no 504 or IEP for us.  It was just a simple understanding between the principal and my parents that I needed some adaptations, which were very little due to just “having to work with it”.  That was the 1970’s and 80’s where disability awareness was minimal at best.  But, …

Letter to School Board: Air Conditioning Affecting My Child With Dwarfism

Call me the dwarfism and disability rights crusader for my son’s school. First, there was a call to action against a charter school placed on our campus. Then, there was a call to action for air conditioning to be placed in our area schools. Often, PTAs will send out template letters for parents to send to the school board. Instead …