Dwarf Parents: Practical Resources From a Dwarf Family
Real experiences from a dwarf couple raising one child with dwarfism and one average-height child—sharing what we have learned so you do not have to figure it out alone.
Our Story
When we learned we were expecting our son, our lives changed. At 24 weeks, an ultrasound showed that his growth had fallen below the expected curve. “Yup, he’s one of us,” we said. When he arrived that September, he greeted the world by raising his hands to the sky.
Three years later, we were expecting again. This time, the grandmas got their wish: it was a girl. After another anxious pregnancy, she made herself known to the world that August. Her long legs, arms, and torso told the story before genetic testing did—she was ours, and she was average height.
We are two adults with dwarfism raising one child with dwarfism and one average-height child. Along the way, our family has experienced scary times, exciting stages, sad moments, and extraordinary ones. We share those experiences to inform, encourage, and show what life in a dwarf family can really look like.
New to a Dwarfism Diagnosis?
If you have just learned that your child has or may have dwarfism—during pregnancy, at birth, or in the first few years of life—start here. These articles share information and experiences we wish we had on day one.
One valuable early step: Connect with Little People of America (LPA). LPA connects people with dwarfism and their families with community, events, educational resources, and medical information. We became involved when our son was three months old, and it was one of the best decisions we made.
LP Adults Planning a Family
If you are a little person planning a family—whether your partner is LP or average height—these articles are grounded in our firsthand experience as two adults with dwarfism who have navigated pregnancy, inheritance questions, and parenting.
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Essential Community Resources
Little People of America
LPA provides community, advocacy, educational resources, local and national events, and medical information for people with dwarfism and their families.
Visit LPALPA Medical Advisory Board
Meet the physicians and other professionals who serve on LPA’s Medical Advisory Board. LPA notes that information on its site is educational and does not constitute an endorsement of a particular physician or procedure.
View the Medical Advisory BoardLPA National Conferences
National and regional gatherings can be valuable places to meet other LP people and families, learn from specialists, and build lasting community. Our tracker covers past and announced national conferences.
View the Conference ListHave a question we have not answered, or a topic you would like us to cover? Leave a comment below or reach out directly. We read everything.