When my husband and I were planning to get pregnant, there was the question of double dominancy for heterozygous dwarfism. My husband has pseudoachondroplasia and I have achondroplasia. We were told why take the risk and even TRY for children if there is a chance of health issues or being incompatible with life. And…
Soapbox Time. 😕 Please, parents! If there is one thing that you can do for your LP child (or any child): teach them to eat healthy and keep their weight down. It IS so easy for LPs to gain weight and even tougher to lose it. I’m not talking about body image. We’re talking about…
📋 Just received a diagnosis? Start with our Welcome page and our overview of dwarfism genetics. For finding a specialist, the LPA Medical Advisory Board is the best starting point. Pregnancy is a massive topic of discussion on community message boards, frequently raised by short-stature women and couples navigating family planning. Because there are so…
Our dwarf son has had multiple MRI’s and CT scans, so we’ve had some extensive experience with anesthesia. In addition, we have had MRI’s and CT scans done as adult LPs. Here’s what you can expect for MRIs without contrast: The length of the scheduled time for an MRI will be much longer than the…
Who said being a stay-at-home mom is not dangerous? I slipped on our glossy, 80’s kitchen tile this morning and then banged my head really hard on the wall. Thankfully, I didn’t black out. But, I did have this shooting pain throughout my body and seriously thought I might get major spinal cord injury from…