An LP family’s practical travel guide How we travel with CPAP and BiPAP equipment—plus current guidance on achondroplasia, airport screening, batteries, hotel accessibility, mask fit, and the supplies we never put in checked luggage. This is how our family travels with breathing equipment. Choose CPAP or BiPAP equipment, pressure settings, masks, chin straps, humidification, and…
Can’t vs. Shouldn’t There is a meaningful difference between what a child physically cannot do and an activity that may carry extra risk. Good guidance should explain that difference without teaching fear. This distinction came up after a parent challenged something I said during a workshop for average-height parents of children with dwarfism. Her young…
A Little Person Parent’s Perspective Extended limb lengthening is a medical decision, an identity conversation, and a years-long family commitment. Those parts deserve to be considered together. “Limb lengthening” can feel like naughty words in the dwarfism community. The subject touches nerves that go far beyond inches: independence, pain, childhood, identity, acceptance, and the pressure…