Who said being a stay-at-home mom is not dangerous? I slipped on our glossy, 80’s kitchen tile this morning and then banged my head really hard on the wall. Thankfully, I didn’t black out. But, I did have this shooting pain throughout my body and seriously thought I might get major spinal cord injury from it. I fell on the …
Sleep Apnea and CPAP – The Not So Sexy LifeSaver
Packing to travel can be a pain if you have to include a CPAP/BiPAP in your luggage. No matter how tall you are, the CPAP is just one more thing to lug around. At the same time, you need to keep this expensive medical equipment safe from damage. It helps you breathe while sleeping, so no matter where you are, …
Can’t vs. Shouldn’t
You know, talking about things LP kids can’t do versus shouldn’t reminds me of a recent conversation. A mom at an LPA regional cornered me recently to challenge what I contributed in a POLP workshop. She had a 6 1/2 yr. old achon daughter and had never heard of the Health Supervision Guidelines for Achondroplasia. This 30 yr. study of …
Limb Lengthening: The Naughty Words
I’m a strong believer in experiencing everything in life first hand, which includes our dwarfism. Speaking from one adult LP who faced shyness as a child, get him plugged into LPA events, beyond national and regional conferences. One needs to be surrounded by this community in order to experience it. Your child will see, his/her story is not the only …