A Family Dinner Discussion Voxzogo is a medical treatment, but deciding how we feel about it also brings up identity, childhood, uncertainty, and what families hope treatment can change. New to a dwarfism diagnosis? This is our family’s personal perspective as little people and parents. Our Welcome page and genetics overview are gentler places to…
Family experience + current testing guidance How our family used cord blood for postnatal genetic testing—and what LP families should arrange with a genetics team and laboratory before delivery. Two-part series: This article covers cord blood as a specimen for genetic testing. Our companion article examines the separate decision of whether to store cord blood…
Eating Healthy and Having Short Arms Kitchen appliances and tools that make cooking accessible for LP adults — plus a tribute to Dr. David Rimoin. Affiliate disclosure: Some product links are affiliate links. If you buy through them, we may earn a small commission at no additional cost to you. We recommend products as examples…
Eyeglasses for children with achondroplasia Finding frames that fit a beautiful face Our son was prescribed glasses before age three. Finding a pair that stayed centered on his eyes—and stayed on his face—took more work than choosing a color from the children’s rack. The short version Start with the prescription, then fit the frame to…
The Joy of a Latex Mattress for an Aching Back How switching to a natural latex mattress changed our sleep — a personal review plus the best latex mattress and topper options available today. Affiliate disclosure: Some product links are affiliate links. If you buy through them, we may earn a small commission at no…