When you read our son’s list of grade school adaptive equipment, it’s like reading a rider list for a rock star. Well, he is a rock star in his own right, but this equipment helped him safely maneuver around campus. He has had some of this equipment since he was 2 years old in the Early Intervention program. Over 6 …
Playing Musical Instruments in Grade School and Beyond
Question: I’m thinking of starting my older AH son on violin soon, which got me thinking, how that might work for my child with achondroplasia if/when he wants to start. Do any of your achon kids play? I guess they make violins small enough? Will his fingers make it around the strings? Does the asymmetrical posture have any impact on …
Low-Incidence Funding
When my husband and I were in grade school, there was no 504 or IEP for us. It was just a simple understanding between the principal and my parents that I needed some adaptations, which were very little due to just “having to work with it”. That was the 1970’s and 80’s where disability awareness was minimal at best. But, …
Finding Peace, Grace and Power: Words of Advice To My Children About Bullying
My grandmother was very wise in her years to instill the fire in my belly. But, I never knew how much that fire would need to be re-lit and fueled continuously throughout my life because people are just plain jerks. I’m not talking about the random, uneducated person that calls me a midget or the bratty 9-year old kid that …
Letter to School Board: Air Conditioning Affecting My Child With Dwarfism
Call me the dwarfism and disability rights crusader for my son’s school. First, there was a call to action against a charter school placed on our campus. Then, there was a call to action for air conditioning to be placed in our area schools. Often, PTAs will send out template letters for parents to send to the school board. Instead …
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