You know, talking about things LP kids can’t do versus shouldn’t reminds me of a recent conversation. A mom at an LPA regional cornered me recently to challenge what I contributed in a POLP workshop. She had a 6 1/2 yr. old achon daughter and had never heard of the Health Supervision Guidelines for Achondroplasia. This 30 yr. study of …
Limb Lengthening: The Naughty Words
I’m a strong believer in experiencing everything in life first hand, which includes our dwarfism. Speaking from one adult LP who faced shyness as a child, get him plugged into LPA events, beyond national and regional conferences. One needs to be surrounded by this community in order to experience it. Your child will see, his/her story is not the only …
Speech: Getting from the Grunts to the Good
I can totally understand a parent’s frustration when your 1 year old child, not only cannot walk yet, but also grunts and doesn’t speak a word other than “Da-Da”. But remember, it is amazing when they actually do speak beyond the grunts and you can sit and watch the development. Dwarfs in general have low muscle tone. Achons have issues …